Thursday, August 29, 2013

Help me Find it


Over the past month, I have been seriously inspired by the Sidewalk Prophets' "Live Like That" CD. Every time we drive to the hospital, be it for routine appointments, meetings, or semi emergent problems, we blast "Live Like That" for the entire 45 minute trip. Now, I am the first to admit that I tend to shy away from overtly Christian music for the B4SMA Productions awareness videos due to the fact I want to ensure that everyone feels welcome and supported by B4SMA. That being said, I love listening to Christian music in my personal life and "accidentally" stumbled across "Live Like That" earlier this year. From the first time I listened to it, I felt truly compelled to create SMA Awareness videos centered around three of the songs from the "Live Like That" CD.
In case you are unaware of SMA, here is a bit of information you might find useful:
Quick Facts About Spinal Muscular Atrophy (SMA): 
  • SMA is the #1 genetic killer of children under the age of 2. 
  • SMA children with the most severe form often face quickly  increasing muscle weakness, leading to paralysis and death. 
  • One of every 6,000 children born are affected by SMA. 
  • One out of 40 people, most unknowingly, carry this deadly gene. 
  • SMA does not discriminate. 
  • There is NO CURE, however, with funding for research, SMA is the most likely genetic disease to be cured in the next 2-4 years.  A cure might not restore lost functions, but will stop further regression. 
While August is recognized as SMA Awareness Month, for families who have had their lives irrevocably altered by the diagnosis, every month is SMA Awareness Month. Educate yourself and others about this disease and help us find a cure.
Every year, I do my best to educate my friends and family about SMA and the challenges facing those living with it, as well as those who have lost their battle. I also aim to give you facts and stats in regards to SMA. I will be doing all of that again this year but with a twist... I am not the only face of SMA. I am just one of thousands. This year I hoped to not only educate but to introduce others who have been impacted by SMA, as well as organizations that improve the lives of individuals. My original goal did not involve God or Christianity but I think He led me to different plans. I would like to encourage everyone to watch all of the videos to the right and below and learn more about SMA and Help Us Find a Cure.

Save My Life SMA Awareness video

This is Not Goodbye SMA Awareness video